Going Gluten-FreeMarch 7, 2012

United We Stand! Medical Experts Unite for Celiac Disease and Gluten Sensitivity

Comments (2)

Posted by Alicia Woodward

Last week, leading doctors, scientists, researchers in the field of celiac disease and gluten sensitivity announced the formation of a new group—the North American Medical Society for the Study of Celiac Disease (NASSCD).

From where I stand, this is promising news for the gluten-free community. At last, our medical and scientific experts are uniting to speak with one voice for the betterment of all those who are gluten free.

What’s really encouraging is that the group is giving gluten sensitivity equal weight with celiac disease in terms of focus. Its stated mission is to “advance the fields of celiac disease and gluten-related disorders” through research and excellent clinical care, which includes diagnosing and treating patients.

Frankly, the gluten-free community has a history of being contentious and even uncooperative in terms of working together for our common good. I’m not talking about those who are living gluten free but about various national celiac groups that represent us. Seeing our medical experts unite to form this organization is very heartening, indeed.

Congratulations to well-known celiac expert Dr. Stefano Guandalini from the University of Chicago Celiac Disease Center for being elected the group’s first president, and to celiac expert Dr. Joseph Murray from the Mayo Clinic in Rochester, MN, for serving as president elect. (We’re proud to have both Dr. Guandalini and Dr. Murray on our masthead as medical advisors!)

According to a press release, here’s what the group lists as its preliminary activities:

  • Organize educational, training and scientific gatherings for the medical and scientific communities;
  • Encourage careers in the field of celiac disease by promoting education, training and mentoring of clinical practitioners and researchers;
  • Develop funding by private and public sources for research and to use a peer-review process to award grants;
  • Provide leadership in the development of clinical and research protocols to help assure early detection, proper treatment and scientific progress;
  • Provide patient-support groups with scientifically sound information about the causes, diagnosis and treatment of celiac disease and gluten sensitivity.

Fingers crossed for great things to be accomplished for the gluten-free community. United we stand!

For more about this new group, check out its website at nasscd.org.


Comments (2)

As someone who had negative blood results and negative biopsies, but suffer from severe nausea, vomiting, pain and high liver enzymes upon gluten ingestion, I'm wondering why the new group is focusing more on celiac disease ~~ do we really need another group devoted to celiac? What about naming the group, "The North American Medical Society for the Study of Gluten Sensitivities?" Celiac disease is also a gluten sensitivity, so we would be catching everyone.

Sorry, but I'm not terribly excited about seeing a new group that seems to be focused on what a number of other groups are doing. Feeling a bit like I've been slapped in the face ~~ those of us who suffer all the symptoms of CD and struggle with the cost and isolation of the GF diet don't get recognition even in the name of a new group. Ann G, Kansas

Posted by: Ayn G | March 12, 2012 7:08 PM    Report this comment

The need is for information about cross contamination of food to the resturants and folks selling the food. I often find glutten free baked goods unwrapped in a cupboard where you can open the door and use tongs to pick out your baked good. Who knows if the tongsgot mixed up or muffins or bread rolls placed in the same container as the glutten free one. Glutten free should always be wrapped seperate unless produced by a bakery that produces only glutten free baked goods. Where I live I have to drive almost 50 miles one way to Whole Foods and also where there is a glutten free Bakery. Also more physicians and physicians assisants need to be aware of the sysptoms of Celiac. And also of the problems of not enough fiber. I am willing to eat plain Vegetables and meat. And have good results. Eating out is always a problem.

Posted by: marjorie h | March 8, 2012 11:08 AM    Report this comment

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